How Canadians Value Rare Diseases Given Their Opportunity Cost?
نویسندگان
چکیده
منابع مشابه
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متن کاملThe value of collaboration in improving knowledge on rare diseases.
enshrined in the global TREAT-NMD registries (http:// www.treat-nmd.eu/resources/patient-registries/overview) to which the Canadian registry is an active contributor. Ensuring that patients with rare diseases get access to the best quality diagnosis and care presents challenges that are best addressed by networking and sharing of resources. It is good to see this concept bear fruit in the paedi...
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ژورنال
عنوان ژورنال: Value in Health
سال: 2014
ISSN: 1098-3015
DOI: 10.1016/j.jval.2014.03.027